SOUTHFIELD (wxyz) - Vic Faust was the emcee for the 2014 HHT Annual Fundraising event which was held on Friday March 21st at the Dearborn Inn.
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels, which affects approximately 1 in 5,000 people. It affects males and females from all racial and ethnic groups. The disorder is also sometimes referred to as Osler-Weber-Rendu (OWR) after several doctors who studied HHT about 100 years ago. In 1896 Dr. Rendu first described HHT as a hereditary disorder involving nosebleeds and characteristic red spots that was distinctly different from hemophilia. Before Dr. Rendu's work, doctors did not understand that individuals with what we now call HHT have abnormalities of their blood vessels, not a clotting problem in the blood itself. Drs. Weber and Osler reported on additional features of HHT in the early 1900s. More than a hundred years later, HHT is still often misdiagnosed in affected individuals and many doctors do not understand all of its manifestations.
Our mission is to raise money for continued research into a cure for HHT, increase awareness of HHT and its effects, and provide regional support for families affected by HHT through an annual grassroots fundraising campaign located in and around Southeast Michigan. Our Hope Holds the Cure is not a non-profit organization, proceeds raised through the Our Hope Holds the Cure events are given directly to the HHT Foundation.
Canton native Jody Nissan is doing everything she can to generate money to fight HHT. She literally fights it everyday with her own family members who suffer with HHT.
Here is a link of what one man is doing to fight HHT!