Fundraiser set for Aug. 23 to help save 8-year-old with rare disease

ANN ARBOR, Mich. (WXYZ) - A fundraiser is being held August 23 to help raise money for an 8-year-old boy to receive life-saving out-of-state treatment.

Hayden Watkins was born with a disease called Adrenoleukodystrophy (ALD). Hayden was diagnosed on July 8 with the childhood onset of the disease.

Doctors found a lesion on his brain which means his brain is deteriorating.

The only way to save Hayden's life is through a stem cell or bone marrow transplant. When he receives a donor, Hayden and his family will be at the University of Minnesota for five to seven months for chemotherapy, transplant and recovery.

If Hayden does not receive this transplant, his body will break down to a vegetative state within two to four years which will eventually take his life.

The procedure can only be done out of state and insurance will not cover Hayden's expenses.

Hayden's Day Benefit will go from 4:00 p.m. to midnight. The night will include a pulled pork dinner, bands and a DJ, raffles and more.

The fundraiser will be held at the local IBEW #252 Union Hall at 7920 Jackson Rd., Ann Arbor, Mi, 48103.

To donate for Hayden's treatment click here.

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