Inspiring young Monroe woman battling a rare genetic disorder has passed away

(WXYZ) - A truly inspiring young woman from Monroe has passed away after a lifelong battle with a rare genetic disorder.

We first started following Stacy Wain at 18 months old when she became the first unrelated bone marrow transplant recipient in the United States.

She then defied all odds with strength and endurance making it through open heart surgery in 2011.

Wain suffered from MPS, or Hurler's Syndrome, a rare genetic disorder that affects enzyme production. She never considered her condition a disability.

Wain passed at the age of 26 on May 19 at Mott's Children's Hospital in Ann Arbor due to complications from recent surgery.

For more information on funeral arrangement click here.

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