WATERFORD, Mich. (WXYZ) - For almost 3 years, Maysie Madison has needed around the clock care.
The Justin Beiber loving, sweet young girl was once your average kid.
“She loved going to the mall, she was my ice cream partner,” said Maysie’s mother Stephanie. “We probably went two or three times a week to get ice cream. She loved riding her bike.”
One day, two and a half years ago, Maysie started having seizures. Slowly, they started to get worse. Eventually, she had to have surgery to remove thee quarters of the right side of her brain with the hopes the seizures would stop.
“When she came out of surgery, a few days later, then she started seizing again,” said Stephanie.
Since then it has been an even tougher road for Maysie and her family, her mother, providing most of her care. Recently nurses have been able to step in at night.
“Our journey has begun with trying different medicines, different doctors,” said Stephanie.
Maysie’s illness has left her paralyzed and unable to speak. She suffers from an autoimmune disorder but what kind, is not known.
Stephanie believes if doctors can just get the seizures to stop, her daughter will have a chance to make real progress.
“She’ll go through a few weeks where there are no seizures and I think 'Oh man, she looks good. She’s moving her arms. She’s responding.’ Moving her legs and then something will happen and she has a seizure again,” says Stephanie.
Now, there might be a miracle for Maysie.
Doctors at the Mayo Clinic have offered to help Maysie for charity. They are leaders in their field when it comes to cases like Maysie’s, but the only way to get the 13-year-old there is to airlift her. That can cost anywhere from $6,000 to $12,000 thousand dollars - one way.
Maysie has a blood clot disorder, Brittle Bone syndrome, and she is on a ventilator and there is no other way to get her to the Mayo Clinic.
A GoFundMe account has been set up to help Maysie get to the Mayo. Her mother is hoping for support from the community to help give her little girl a chance to change her life.
“For her to even be able to say mom again. For her to even be able to reach out her hand and give me a hug or hold my hand again. That I haven’t been able to do that in a long time,” said Stephanie. “To be able to form a relationship and form a future with her.
The goal is to raise enough money by the September 23. That is when Maysie has to be airlifted to the Mayo.