Family of boy with incurable disease gets home makeover

(WXYZ) ALLEN PARK, MI - At the Anderson home, a flurry of activity is underway.  Volunteers building, organizing and redesigning.  

The goal is to turn a tiny home into a healing space for a little boy and his family.  They have been through so much in recent years.

"The journey has been hard." said Flora Anderson. "Every time we go to the hospital we come back and we don't know if we are going to bring him home."

Matthew is 9 years old.  When he was 3, he was diagnosed with an incurable disease.  He has Leukodystrophy.  Doctors didn't think he would live to see his fourth birthday.

 He has lost his motor skills, stopped talking, stopped eating and is now connected to an oxygen machine.

Matthew requires 24 hour care and massive amounts of medical equipment.  His family didn't want to isolate him, so his hospital bed was set up in the living room.  Before long, the entire family was lost in a sea of clutter.  That is until the Suite Dreams Project stepped in.

"We felt like they were in need of organization for all his medical supplies and a space of his own." said the organization's co-founder Kay Ponicall.

At first, the organization was only planning to give Matthew his own bedroom.  After visiting the home and meeting the family, they knew they had to do more.

"It was an entire home renovation, not just one room." said Art Van volunteer Scott Patrick.

With the help of companies like Art Van and Jeffery King Interiors, volunteers clear the chaos and create a home that functions for the entire family.

"I feel like this is a new start.  We can move around and the other kids can enjoy our home too." said Flora Anderson.

You can find out more about the Suite Dreams Project at www.suitedreamsproject.org .

 

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