Miss Michigan shines spotlight on Mayer-Rokitansky-Kuster-Hauser, disease that affects 75K in U.S.

(WXYZ) - Becoming Miss Michigan 2013 was a complete surprise to Wyandotte native Jaclyn Schultz.

And now she has turned the spotlight on a little known disease that affects about 75,000 women in the United States, including her.

Schultz, 24, found out what was going on inside her body when she was about 15 years old.

"I failed to menstruate... they first thought it was because I was so tall and thin and athletic," said Schultz.

But after she turned 15, doctors were concerned and decided to do an MRI. That's when they found out she had Mayer-Rokitansky-Kuster-Hauser syndrome or MRKH.

"The doctor came out and asked: 'Has your daughter had a hysterectomy'," said Jaclyn's mother, Suzy.

The condition-- MRKH-- caused Jaclyn to be born without a uterus.

About 1 in 4,500 women have it and at 15 it was tough for her to handle. Jaclyn has now turned her MRKH from a weakness to a strength.

She is now the spokeswoman for a Beautiful You MRKH Foundation, connecting and uplifting women across the globe.

Part of the Miss Universe platform is educating young women about reproductive health.

"She was destined to do this pageant," Jaclyn's father, Don, said.

Hopefully, she'll wow the stage again in June for the Miss USA pageant, but Jaclyn's true beauty is on the inside.

"I feel like there is a reason that I was born not to be able to have my own children, so... I want to adopt and save a child that maybe can't have a loving family," said Jaclyn. 

Jaclyn will take the stage in the 2013 Miss America pageant at the Planet Hollywood Hotel and Casino in Las Vegas.

A Beautiful You is even planning an informational meeting for the public in Ann Arbor on May 11. For more information, go to : http://www.beautifulyoumrkh.org/





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