Novi skier with rare disease inspires with determination, spirit

Gets first varsity start
Posted at 11:09 PM, Feb 06, 2017
and last updated 2017-02-07 05:30:19-05

For Hunter Goodman, being on the slopes is a miraculous experience.

"Feels like a miracle. He almost didn't live when he was born so this is really awesome. It's really awesome," said Natasha Goodman, Hunter's mother.

The Novi High school sophomore suffers from an auto-immune disorder so rare it's un-named and undefined. He gets most of his nutrition from a feeding tube.

For the past two years, he has been on the JV ski team. But Monday night, he was called up in part so that he could ski with his older brother, a senior on the team.

"He earned it," said Ben Fisher, the team's coach.

Hunter comes down the hill with a guide by his side. But the technique is all Hunter, who has goals beyond the slopes.

"I want to coach kids," he said.

Hunter's advice for future skiers:  "Enjoy and have fun, and do your best."